Whether it’s an exciting time, or a difficult time of the year, the holiday season is upon us. The holidays can give much joy and happiness, but they can also bring added responsibilities and feelings of grief. Because of the additional demands of the season, many family caregivers understandably experience an increase in stress this time of year.
For those caregivers looking for help and advice, FCA has articles on holiday caregiving topics including stress, family dynamics, and gratitude. Our new Caregiving Through the Holidays webinar is also available to view. New and seasoned caregivers can take advantage of FCA’s free online service FCA CareJourney. CareJourney provides quality information, support, and resources tailored to your individual situation.
On behalf of the staff, volunteers, and board of directors at FCA, I’d like to wish you all a peaceful and happy holidays.
Through Their Eyes The Role of Caregivers in Clinical Trial Participation
Friends, Family, and Loved Ones Can Serve a Vital Role in Supporting Trial Participants
Time and again we hear stories of the love, service, and sacrifice caregivers provide while supporting clinical trial participants through their journeys. From shuttling research volunteers back and forth to appointments, offering emotional support, and reminding participants to take medications or fill out diaries, caregivers are often among the unsung heroes of clinical research.
In the videos below you’ll meet three pairs of participants and caregivers, each with a unique story. We hope you find as much inspiration in their stories as we do.
Pamela & Brent’s Partnership
“You can do it alone, but it’s nice that you don’t have to.”
Meet Pamela and Brent. They’ve been married for 22 years. Pamela has Non-Small Cell Lung Cancer and is participating in an investigation clinical trial. Brent is her caregiver. In this video, we will hear from Pamela and Brent as they talk about dealing with the day to day challenges of Pamela’s diagnosis as a team, working together to create a new normal, and the benefits to participating in a clinical trial with a partner.
Becoming a ‘dual eligible’ can help older Americans pay out-of-pocket fees
by Dena Bunis, AARP, November 13, 2018|Comments: 2
Every year many Medicare beneficiaries are surprised to learn that they can face thousands of dollars in costs above what the federal government pays for their health care.
There are premiums, deductibles, copays and coinsurance — costs that vary depending on whether you select original Medicare or a Medicare Advantage plan, where you live, how healthy you are and how much medicine you take.
But there is some financial relief available for older Americans who have low or very low incomes and few assets. Depending on your finances, you could qualify to become what is called a “dual eligible,” someone who can enroll in both Medicare and Medicaid. Even if your income is not low enough for you to qualify for full Medicaid benefits, you may be eligible for one of the four Medicare Savings Programs that can help you pay for all or some of those costly out-of-pocket Medicare expenses. And you can enroll in Medicaid and the savings programs at any time — not just during the Medicare open enrollment period.
Medicaid is funded by both the federal and state governments. While there are some national eligibility and benefit requirements, each state has its own Medicaid eligibility standards and decides which optional services it will cover and how much it is willing to pay for health care that Medicare doesn’t cover.
Here’s what you need to know about the dual eligible programs:
What might Medicaid pay for that Medicare doesn’t?
The premium for Medicare Part B, which covers doctor visits and other outpatient services. That monthly premium will be $135.50 in 2019.
The Medicare Part B deductible, which will be $185 for 2019.
The Medicare PartA (hospital insurance) deductible, which for 2019 will be $1,364 for hospital stays.
Both Medicare Part A and Part B copays and coinsurance.
The Medicare Part D premium, deductibles and copays for prescription drugs. Coverage for those costs is available through the Extra Help program, which Medicaid and Medicare Savings Program enrollees automatically qualify for.
Nursing home care and home- and community-based long-term services and supports.
In some states, Medicaid will cover benefits that Medicare does not, such as dental care, transportation to and from doctor visits, eyeglasses, physical therapy and other services.
Do I qualify for full Medicaid?
The eligibility requirements vary from state to state, but generally states consider your annual income and financial assets when determining whether you are eligible for full Medicaid.
If you live in one of the 37 states (including the District of Columbia) that will have expanded Medicaid as of next January and you earn no more than 138 percent of the federal poverty level (about $16,753 for an individual), you may qualify. In states that haven’t expanded the program, the income levels for Medicaid eligibility vary greatly. For all eligibility questions, you should check with your state Medicaid office.
If you are a Medicare beneficiary, your enrollment in Medicaid may be subject to a financial asset test. The value of assets you’re allowed to have and still be eligible varies from state to state. The federal guidelines allow you $2,000, but some states have higher thresholds while others don’t have an asset test at all.
Excluded from the $2,000 asset test are such things as your home, one car, some burial expenses, some life insurance and household and personal items. States generally look back at an applicant’s assets for five years to make sure they haven’t divested themselves of those resources just to qualify for Medicaid.
The asset income limits for Medicare Savings Programs are higher and change every January. For 2018, the limits for those programs are $7,560 for a single person and $11,340 for a married person living with a spouse and no dependents. As with full Medicaid, some states have higher resource thresholds.
Casey Schwarz at the Medicare Rights Center says that “one of the biggest problems we see is that people assume they aren’t eligible and don’t apply. People should look into what the income and asset guidelines are for their state.”
One caution: If you had Medicaid before you turned 65, you may not necessarily continue to qualify for it after you turn 65 and enroll in Medicare. Check with your state Medicaid office.
The Qualified Medicare Beneficiary(QMB) program helps pay for Part A and B premiums as well as deductibles, coinsurance and copays. If you qualify for this program, you automatically qualify for the Extra Help prescription drug program to help with the out-of-pocket costs of your medicines. This program has the lowest income threshold of the four.
The Specified Low-Income Medicare Beneficiary (SLMB) program helps pay only for Part B premiums, not the Part A premium or other cost sharing. If your income is too high to qualify for the QMB program, you might qualify for this one. You also automatically qualify for Extra Help for prescription drugs.
The Qualifying Individual (QI) program only helps pay for Part B premiums and no other cost sharing. If your income is too high for you to qualify for the QMB or SLMB programs, you might qualify for the QI program. To get help from this program, you must reapply for benefits every year. Funding is limited, so these benefits are first come, first served. Priority is given to individuals who received help through this program the previous year.
The Qualified Disabled and Working Individuals (QDWI) program only helps pay for Medicare Part A (hospital insurance) premiums. This program is designed for individuals with disabilities, under age 65, who are currently working and lost their premium-free Part A benefit when they began to work. To qualify, you cannot be receiving Medicaid in your state, and you must meet the income and resource limits set by your state.
Do most doctors accept Medicaid?
It varies. If you are applying for Medicaid, it’s a good idea to check with your medical providers to see if they will accept that coverage, especially when it comes to seeing specialists.
Is there an open enrollment period for Medicaid?
No. You can enroll in Medicaid at any time during the year. But in many states you have to update your enrollment information every year to make sure you still qualify. If you don’t, you can lose your coverage. Jennifer Goldberg, directing attorney at Justice in Aging, says: “We see people who don’t know they don’t have coverage until they get a bill or show up at the pharmacy and the prescription they used to pay $1 for is showing up as $100.”
Where can I find out more?
Medicaid.gov has links to information explaining the program and to every state’s Medicaid office.
Each state has a State Health Insurance Assistance Program (SHIP) that provides counseling and help for Medicare beneficiaries. SHIP counselors can answer some of your Medicaid questions and refer you to local Medicaid officials to help with others.
The National Council on Aging has a benefits checkup website that has information on Medicare, Medicaid and other programs that help older Americans.
It’s easy to see why some seniors can fall into deep depression and decide life may not be worth living anymore. They may have lost a spouse, family members, children, friends or perhaps their mobility and health.
Sometimes depression may come softly, slowly stealing the seniors’ enthusiasm for life and isolating themselves from others while struggling alone with all sorts of depressive emotions.
New therapies have emerged that can help seniors deal with emotional issues that even they may not know they have. Talk therapy is one method of treatment that’s making amazing pathways to help seniors re-evaluate their present situation and find ways to deal with it.
How Talk Therapy for Seniors Works
Mental health social workers, psychiatrists and psychologists are become adept at helping seniors revamp their lives with the help of talk therapy. This type of therapy is designed to get the seniors to confront their negative thoughts and mood swings and develop new ones that can stave off bouts of depression that plague them in future years.
Some seniors that are dealing with depression today may be part of the generation that didn’t put much stock into therapy or counseling. They think of it as ‘spilling their guts’ to a person they don’t know and who doesn’t really know them. It’s embarrassing and a stigma that they want to avoid at all costs.
During a senior’s younger years, most have likely never entered a therapist’s office. Now, however, they’re recognizing that some of their problems might be easier to handle if they talk to a professional about ways to deal with them.
Since Medicare pays for therapy and psychiatric assessment, there’s no viable reason for a senior not to have an evaluation from a professional. Seniors are realizing that their time is more limited than it was and that they need to make the most of whatever years they have left.
Talk therapy is a good place to start when dealing with a senior’s depression and negative thoughts. If the patient is in full blown clinical depression, antidepressants may be in order – or some other type of lifestyle change such as diet and exercise.
Talking to someone neutral — especially a trained professional — about personal problems and fears can’t hurt and will likely give the senior a new perspective on life so they can become open to changes and new opportunities that present themselves in later years.
Claustrophobia is a form of anxiety disorder, in which an irrational fear of having no escape or being closed-in can lead to a panic attack.
It is considered a specific phobia according to the Diagnostic and Statistical Manual 5 (DSM-5).
Triggers may include being inside an elevator, a small room without any windows, or even being on an airplane.
Some people have reported that wearing tight-necked clothing can provoke feelings of claustrophobia.
Fast facts on claustrophobia:
Here are some key points about claustrophobia. More detail is in the main article.
Claustrophobia affects some people when they are in a small space.
It can lead to feelings of panic.
Causes may include conditioning and genetic factors.
A variety of tips and treatments may help people overcome their fear.
What is claustrophobia?
Claustrophobia is the fear of a closed-in place from which escape would be difficult or impossible.
The word claustrophobia comes from the Latin word claustrum which means “a closed-in place,” and the Greek word, phobos meaning “fear.”
People with claustrophobia will go to great lengths to avoid small spaces and situations that trigger their panic and anxiety.
They may avoid places like the subway and prefer to take the stairs rather than an elevator, even if many floors are involved.
Up to 5 percent of Americans may experience claustrophobia.
A psychologist or psychiatrist will ask the patient about their symptoms.
A diagnosis of claustrophobia may emerge during a consultation about another anxiety-related issue.
The psychologist will:
ask for a description of the symptoms and what triggers them
try to establish how severe the symptoms are
rule out other types of anxiety disorder
To establish some details, the doctor may use:
a claustrophobia questionnaire to help identify the cause of anxiety
a claustrophobia scale to help establish the levels of anxiety
For a specific phobia to be diagnosed, certain criteria need to be met.
a persistent unreasonable or excessive fear caused by the presence or anticipation of a specific situation
anxiety response when exposed to the stimulus, possibly a panic attack in adults, or, in children, a tantrum, clinging, crying or freezing
a recognition by adult patients that their fear is out of proportion to the perceived threat or danger
employing measures to avoid the feared object or situation, or a tendency to face the experiences but with distress or anxiety
the person’s reaction, anticipation or avoidance interferes with everyday life and relationships or causes significant distress
the phobia has persisted for some time, usually 6 months or longer
symptoms cannot be attributed to another mental condition, such as obsessive-compulsive disorder (OCD) or post-traumatic stress disorder (PTSD)
Claustrophobia is an anxiety disorder. Symptoms usually appear during childhood or adolescence.
Being in or thinking about being in a confined space can trigger fears of not being able to breathe properly, running out of oxygen, and distress at being restricted.
When anxiety levels reach a certain level, the person may start to experience: sweating and chills
accelerated heart rate and high blood pressure
dizziness, fainting, and lightheadedness
hyperventilation, or “over breathing”
shaking or trembling and a sense of “butterflies” in the stomach
a choking sensation
tightness in the chest, chest pain, and difficulty breathing
an urge to use the bathroom
confusion or disorientation
fear of harm or illness
It is not necessarily the small spaces that trigger the anxiety, but the fear of what can happen to the person if confined to that area.
This is why the person fears running out of oxygen.
Examples of small spaces that could trigger anxiety are: Claustrophobia trapped.
Claustrophobia can stem from a feeling of being trapped, and what could happen if they stayed confined to that area.
elevators or changing rooms in stores
tunnels, basements, or cellars
trains and subway trains
cars, especially those with central locking
some medical facilities, such as MRI scanners
small rooms, locked rooms, or rooms with windows that do not open
checking the exits and staying near them when entering a room
feeling anxious when all the doors are closed
staying near the door in a crowded party or gathering
avoiding driving or traveling as a passenger when traffic is likely to be congested
using the stairs instead of the elevator, even if this is difficult and uncomfortable
Claustrophobia involves a fear of being restricted or confined to one area, so, having to wait in line at a checkout may also cause it in some people.
Cognitive behavioral therapy
Cognitive behavioral therapy (CBT) can be used to reduce the frequency and potency of the fear reaction’s triggers.
Following a diagnosis, the psychologist may recommend one or more of the following treatment options.
Cognitive behavioral therapy (CBT): The aim is to retrain the patient’s mind so that they no longer feel threatened by the places they fear.
It may involve slowly exposing the patient to small spaces and helping them deal with their fear and anxiety.
Having to face the situation that causes the fear may deter people from seeking treatment.
Observing others: Seeing others interact with the source of fear may reassure the patient.
Drug therapy: Antidepressants and relaxants can help manage symptoms, but will not solve the underlying problem.
Relaxation and visualization exercises: Taking deep breaths, meditating and doing muscle-relaxing exercises can help deal with negative thoughts and anxiety.
Alternative or complementary medicine: Some supplements and natural products, for example, lavender oil or a “rescue remedy,” may help patients manage panic and anxiety.
Treatment often lasts around 10 weeks, with sessions twice a week. With appropriate treatment, it is possible to overcome claustrophobia.
Tips for coping
Strategies that can help people cope with claustrophobia include:
staying put if an attack happens. If driving, this may include pulling over to the side of the road and waiting till symptoms have passed.
Reminding yourself that the frightening thoughts and feelings will pass
trying to focus on something that is not threatening, for example, the time passing or other people
Breathing slowly and deeply, counting to three on each breath
challenging the fear by reminding yourself that it is not real
visualizing positive outcomes and images
Longer-term strategies may include joining a yoga class, working out an exercise program, or booking an aromatherapy massage, to help cope with stress.
In this video, Stella Lourency, Assistant Professor of Psychology at Emory University, explains that people with higher levels of claustrophobic fear tend to underestimate distances.
Past or childhood experience is often the trigger that causes a person to associate small spaces with a sense of panic or imminent danger.
Experiences that can have this effect may include:
being trapped or kept in a confined place, by accident or on purpose
being abused or bullied as a child
getting separated from parents or friends when in a crowded area
having a parent with claustrophobia
The trauma experienced at that time will affect the person’s ability to cope with a similar situation rationally in future. This is known as classic conditioning.
The person’s mind is believed to link the small space or confined area with the feeling of being in danger. The body then reacts accordingly, or in a way that seems logical.
Classic conditioning can also be inherited from parents or peers. If a parent, for example, has a fear of being close in, the child may observe their behavior and develop the same fears.
Possible genetic or physical factors
Other theories that may explain claustrophobia include:
Having a smaller amygdala: This is the part of the brain that controls how the body processes fear.
Genetic factors: A dormant evolutionary survival mechanism causes reactions that are no longer needed in today’s world.
Mouse studies have indicated that a single gene may cause some individuals to have a greater degree of “resident-intruder stress.”
One group of researchers has suggested that people who experience claustrophobia perceive things as being nearer than they are, and that this triggers a defense mechanism.
Senior Vice President of Oncology at Astellas Pharma
Tens of thousands of researchers, clinicians, and industry leaders descended upon Chicago for the annual meeting of the American Society of Clinical Oncology (ASCO), where breakthrough science and promising statistics in cancer care were on full display.
The Annual Report to the Nation on the Status of Cancer, published this spring by the Centers for Disease Control and Prevention, the American Cancer Society and other public and private-sector organizations, showed that mortality rates for the most common cancers in men and women, including lung, colorectal, female breast, and prostate, have continued to decline. With the exciting progress we’re seeing in immunotherapies, personalized medicine and other therapeutic areas, there is every reason to believe that meaningful progress will continue well into the future.
However, defeating cancer is about more than breakthroughs or statistics alone. In the midst of all the scientific excitement, we must not lose sight of the fact that a disease like cancer, even if treatments are ultimately successful, fundamentally changes the life of the person battling it.
Those of us who have devoted our careers to changing lives need to define “life” in a holistic way, beyond the cellular level. This begins with supporting ways to reduce the impact of cancer treatments on patients. At Astellas, our team is deeply encouraged by what we’ve seen, for example, in the use of virtual reality to help people better manage the high degrees of stress that accompany treatment. What’s more, the continuing proliferation of online and community-based support networks is increasingly helping to ensure that people fighting this disease never have to feel alone.
Even beyond that, though, we need to focus our ideas and energies on how we can help cancer patients regain the lives that the disease stole from them. We’re learning more about the benefits of helping people process the emotions they experience during diagnosis and treatment, establish post-treatment plans, and rebuild their confidence regarding career, education, finances, and relationships.
As a company and industry, one of the most important things we can do to help achieve this holistic approach to cancer care is put ourselves squarely in the shoes of those fighting the disease. Not too long ago, this hit close to home when my father was diagnosed with head and neck cancer and my perspective of our healthcare system completely changed. Although I had been working in the industry for more than 20 years, I found myself confused and frustrated when I was put into the caregiver role. As I attempted to navigate the system and coordinate the right care for my father, I was met with both discrepancies in treatment options and constant misunderstandings.
My experience as a caregiver reinforced my view that we must ask patients and their caregivers about their lives with the disease and how it has affected them on a daily basis. Only then can we truly understand the impact of the disease and help patients live fully after their diagnoses.
In 2015, Astellas co-developed a prospective patient registry for individuals with castration-resistant prostate cancer (CRPC). The program, Treatment Registry for Outcomes in CRPC Patients (TRUMPET), is designed to follow 1,200 patients for up to six years and evaluate each patient’s clinical and quality of life experience with the disease. With more than 600 CRPC patients already enrolled, TRUMPET helps us understand how these men manage CRPC, navigate the healthcare system, and make treatment decisions with family and caregivers. Importantly, it helps us shape future research and allows our company to make use of real world evidence with patient outcomes and quality of life in mind.
I’m both encouraged and excited that cancer is losing ground every day to our scientific progress. The major breakthroughs and the continual incremental successes are critically important. But I also believe that we, combined with other leaders across healthcare, have the obligation, will and the resources to achieve the most important victories – helping individuals regain the bright outlook they had before the day they received that life-altering diagnosis.
As we celebrate all the exciting research and advances shared at ASCO this week, let’s also be sure to keep this bigger picture in mind.
A new study by patient safety researchers shows common medical errors may be the third leading cause of death in the U.S., after heart disease and cancer. (Deirdra O’Regan/The Washington Post)
Nightmare stories of nurses giving potent drugs meant for one patient to another and surgeons removing the wrong body parts have dominated recent headlines about medical care. Lest you assume those cases are the exceptions, a new study by patient-safety researchers provides some context.
Their analysis, published in the BMJ on Tuesday, shows that “medical errors” in hospitals and other health-care facilities are incredibly common and may now be the third-leading cause of death in the United States — claiming 251,000 lives every year, more than respiratory disease, accidents, stroke and Alzheimer’s.
Martin Makary, a professor of surgery at the Johns Hopkins University School of Medicine who led the research, said in an interview that the category includes everything from bad doctors to more systemic issues such as communication breakdowns when patients are handed off from one department to another.
“It boils down to people dying from the care that they receive rather than the disease for which they are seeking care,” Makary said.
The issue of patient safety has been a hot topic in recent years, but it wasn’t always that way. In 1999, an Institute of Medicine report calling preventable medical errors an “epidemic” shocked the medical establishment and led to significant debate about what could be done.
The IOM, based on one study, estimated deaths because of medical errors as high as 98,000 a year. Makary’s research involves a more comprehensive analysis of four large studies, including ones by the Health and Human Services Department’s Office of the Inspector General and the Agency for Healthcare Research and Quality that took place between 2000 to 2008. His calculation of 251,000 deaths equates to nearly 700 deaths a day — about 9.5 percent of all deaths annually in the United States.
Makary said he and co-author Michael Daniel, also from Johns Hopkins, conducted the analysis to shed more light on a problem that many hospitals and health-care facilities try to avoid talking about.
Although all providers extol patient safety and highlight the various safety committees and protocols they have in place, few provide the public with specifics on actual cases of harm due to mistakes. Moreover, the Centers for Disease Control and Prevention doesn’t require reporting of errors in the data it collects about deaths through billing codes, making it hard to see what’s going on at the national level.
The CDC should update its vital statistics reporting requirements so that physicians must report whether there was any error that led to a preventable death, Makary said.
“We all know how common it is,” he said. “We also know how infrequently it’s openly discussed.”
Kenneth Sands, who directs health-care quality at Beth Israel Deaconess Medical Center, an affiliate of Harvard Medical School, said that the surprising thing about medical errors is the limited change that has taken place since the IOM report came out. Only hospital-acquired infections have shown improvement. “The overall numbers haven’t changed, and that’s discouraging and alarming,” he said.
Sands, who was not involved in the study published in the BMJ, formerly known as the British Medical Journal, said that one of the main barriers is the tremendous diversity and complexity in the way health care is delivered.
Consumer Reports recently investigated California licensing records and found that many doctors who were still practicing were on probation for serious violations of patient safety.
“There has just been a higher degree of tolerance for variability in practice than you would see in other industries,” he explained. When passengers get on a plane, there’s a standard way attendants move around, talk to them and prepare them for flight, Sands said, yet such standardization isn’t seen at hospitals. That makes it tricky to figure out where errors are occurring and how to fix them. The government should work with institutions to try to find ways improve on this situation, he said.
Makary also used an airplane analogy in describing how he thinks hospitals should approach errors, referencing what the Federal Aviation Administration does in its accident investigations.
“Measuring the problem is the absolute first step,” he said. “Hospitals are currently investigating deaths where medical error could have been a cause, but they are underresourced. What we need to do is study patterns nationally.”
He said that in the aviation community every pilot in the world learns from investigations and that the results are disseminated widely.
CONTENT FROM THE CLEVELAND CLINIC
Why empathy matters in healthcare
More hospitals are putting patient comfort and wellbeing at the forefront of their operations—from staff hires to building design to team structure.
“When a plane crashes, we don’t say this is confidential proprietary information the airline company owns. We consider this part of public safety. Hospitals should be held to the same standards,” Makary said.
Frederick van Pelt, a doctor who works for the Chartis Group, a health-care consultancy, said another element of harm that is often overlooked is the number of severe patient injuries resulting from medical error.
“Some estimates would put this number at 40 times the death rate,” van Pelt said. “Again, this gets buried in the daily exposure that care providers have around patients who are suffering or in pain that is to be expected following procedures.”
EPIC-id+ offers the advantages of an Engraved Emergency ID along with three digital pages of your most critical medical information on a waterproof USB. EMS, firefighters and police are trained to look for emergency ID bands. When first responders read your engraved ID and connect EPIC-id to their on-board computers, they immediately have your medical and contact information available in both a physical and digital format.
Digital emergency forms come pre-loaded on EPIC-id, making it simple to input your personal medical information and make updates as often as necessary. No software to download. No subscriptions to pay.
Easy for First Responders
EMS, firefighters and police are trained to look for emergency ID bands. When professional first responders read your engraved tag and connect EPIC-id to their on-board computers to access your medical information, you have the benefit of having your medical information available in both a physical and digital format.
Daily Marketing Services supports the non-profit Community Outreach group “Ashley’s Voice”. Ashley’s Voice provides Community Service information to the residents of Nashville and Middle Tennessee. Connecting the Dots to helping people find the free services they need. Services include Medical Services, Palliative Care, Hospice, Caregivers, Victims of Violent Crimes, Veterans Benefits, Grief Counseling and Medicaid. Information – 615-673-2221
Lean on us when heartbreak and healing go hand in hand.
About Alive Hospice Nashville TN.
Ashley’s Voice Outreach Group
Would you like to ask questions about Hospice – Ashley’s Voice Outreach – 615-673-2221
Alive Hospice is a nonprofit organization that provides compassionate end-of-life care, palliative care, bereavement support and community education. Founded in Middle Tennessee in 1975, Alive Hospice is accredited by The Joint Commission and has held its Gold Seal of Approval for many years. It is also accredited by the National Institute for Jewish Hospices.
Alive Hospice entered the Middle Tennessee landscape in November 1975, only one year after the founding of the first hospice program in the United States. At the time, and through grassroots movements, other hospices also began appearing across the country. Like the group of individuals gathered together by Alive Hospice’s founders, Dr. David Barton and the late Dr. John Flexner, what unified those movements was compassionate people committed to helping patients live in comfort until death occurred and families to grieve with support.
Alive Hospice was chartered in 1975 as a nonprofit organization dedicated with three core goals: providing comprehensive care for terminally ill patients and their families; offering support for grieving adults and children; and serving the community as a center for research and education.
Today, Alive Hospice serves more than 3,600 patients and their families annually (more than 430 daily) and provides grief support services for nearly 600 adults and children in Middle Tennessee in addition to training for tomorrow’s caregivers and education for the community at large.
We provide loving care to people with life-threatening illnesses, support to their families
and service to the community in a spirit of enriching lives.
To be recognized as expert providers of hospice care, palliative care, management of
advanced disease and grief support and to be the agency of choice for the provision of
To be recognized as innovators and leaders in all aspects of end-of-life resources.
To influence the perceptions within the community and among medical professionals so
that the end of life is accepted as a meaningful component of the human experience.
We believe death to be a natural part of life’s journey.
We believe in honesty and integrity in all we say and do.
We believe in compassion to those we serve and to each other.
We believe in respect and dignity for all.
We value competent knowledgeable staff motivated to achieve personal and
We believe in accountability to society, our community and each other.
We believe in responsible stewardship of the resources with which we have been entrusted.
We believe in the continuous pursuit of organizational excellence.
We believe in teamwork to achieve our vision and mission, and to support our values.
Statement of Inclusiveness
As the only not-for-profit, community-based hospice in Middle Tennessee, Alive Hospice never turns anyone away, regardless of ability to pay, insurance status, race, religion, creed, color, sex, age, national origin, veteran status, sexual orientation, or disability. We live our mission to provide loving care to people with life-threatening illnesses, support to their families, and service to the community in a spirit of enriching lives.